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Disney dream comes true for disabled Maghull youngster
24 November 2010

By David Raven

Ryan Noble, pictured just to the left of Santa Claus, with his family on their trip to Florida and Disney World.

A brave Maghull youngster who suffers from a life threatening illness was treated to a once-in-a-lifetime dream trip to Disney World.

Five-year-old Ryan Noble met his cartoon heroes as he joined 24 other children on the enchanting trip to Florida.

The brave youngster suffers from a degenerative muscle wasting condition. He was diagnosed at just two-years-old with Spinal Muscular Atrophy.

The condition affects muscle tone, leaving Ryan with the strength similar to that of a new born baby.

It means Ryan requires a wheelchair for his everyday needs.
Since diagnosis he has been plagued with numerous chest infections often leading to pneumonia and resulting in frequent, often lengthy, hospital admissions.

On top of this, an accident in nursery which caused him to have a broken leg, highlighted that the youngster also had Osteoporosis which he has treatment for every three months.

Ryan's parents Suzanne and Mark, brother Sean, 13 and sister Bethany, six, enjoyed precious time together on a magical week-long holiday last week, something they claim that they have struggled to do in recent years.

The “Destination Dreams” trip is organised by national Charity, Caudwell Children, to help families coping with the trauma of their child’s illness.

The families were supported by a team of dedicated volunteers and a medical team of paramedics and doctors, provided by the charity.

Mum, Suzanne, said: “Ryan is just so excited. He loves Toy Story and his absolute favourite is Mr Potato Head so he is amazed at the thought of seeing him.

"As hard as his condition is, Ryan always remains chirpy. He is the most adorable monkey anyone could meet and like all children his age he loves all things Disney and make-believe, especially Toy Story."

During the week long holiday the family enjoyed days out at DisneyWorld, Universal Studios and SeaWorld - safe in the knowledge that there was a medical team there to support them.

Suzanne, added: ”Although life with SMA is the norm, I am aware of the pressures it puts on the rest of the children.

“Missing birthday celebrations and sleepless nights have become part of everyday life for them.

"Because of Ryan’s needs he requires a lot more time and attention so I’m always conscious of how hard it has been on his brothers and sisters. We’ve missed a lot of them growing up.

“This holiday will give them something back and help us spend time together as a family.”

The family stayed in their own villa at Give Kids the World, a unique resort specifically designed for youngsters with a high medical dependency, so special that a child can only be granted a wish to visit once in their lifetime.

To date, Caudwell Children has donated over £13 million to thousands of sick and disabled youngsters with more than 350 medical conditions throughout the UK.

Trudi Beswick, Chief Executive Officer for Caudwell Children, said “We are thrilled to be able to take Ryan and his family on this year’s trip and hope they thoroughly enjoy their time in Florida.”

Anyone who wishes to find out more about Caudwell Children or Destination Dreams should contact the charity on 0845 300 1348 or visit www.caudwellchildren.com

 


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